Encyc

Encyc houses over 100 concepts relevant to the history of eugenics and its continued implications in contemporary life. These entries represent in-depth explorations of key concepts for understanding eugenics.

Aboriginal and Indigenous Peoples
Michael Billinger
Alcoholism and drug use
Paula Larsson
Archives and institutions
Mary Horodyski
Assimilation
Karen Stote
Bioethical appeals to eugenics
Tiffany Campbell
Bioethics
Gregor Wolbring
Birth control
Molly Ladd-Taylor
Childhood innocence
Joanne Faulkner
Colonialism
Karen Stote
Conservationism
Michael Kohlman
Criminality
Amy Samson
Degeneracy
Michael Billinger
Dehumanization: psychological aspects
David Livingstone Smith
Deinstitutionalization
Erika Dyck
Developmental disability
Dick Sobsey
Disability rights
Joshua St. Pierre
Disability, models of
Gregor Wolbring
Down Syndrome
Michael Berube
Education
Erna Kurbegovic
Education as redress
Jonathan Chernoguz
Educational testing
Michelle Hawks
Environmentalism
Douglas Wahlsten
Epilepsy
Frank W. Stahnisch
Ethnicity and race
Michael Billinger
Eugenic family studies
Robert A. Wilson
Eugenic traits
Robert A. Wilson
Eugenics
Robert A. Wilson
Eugenics as wrongful
Robert A. Wilson
Eugenics: positive vs negative
Robert A. Wilson
Family planning
Caroline Lyster
Farming and animal breeding
Sheila Rae Gibbons
Feeble-mindedness
Wendy Kline
Feminism
Esther Rosario
Fitter family contests
Molly Ladd-Taylor
Gender
Caroline Lyster
Genealogy
Leslie Baker
Genetic counseling
Gregor Wolbring
Genetics
James Tabery
Genocide
Karen Stote
Guidance clinics
Amy Samson
Hereditary disease
Sarah Malanowski
Heredity
Michael Billinger
Human enhancement
Gregor Wolbring
Human experimentation
Frank W. Stahnisch
Human nature
Chris Haufe
Huntington's disease
Alice Wexler
Immigration
Jacalyn Ambler
Indian--race-based definition
Karen Stote
Informed consent
Erika Dyck
Institutionalization
Erika Dyck
Intellectual disability
Licia Carlson
Intelligence and IQ testing
Aida Roige
KEY CONCEPTS
Robert A. Wilson
Kant on eugenics and human nature
Alan McLuckie
Marriage
Alexandra Minna Stern
Masturbation
Paula Larsson
Medicalization
Gregor Wolbring
Mental deficiency: idiot, imbecile, and moron
Wendy Kline
Miscegenation
Michael Billinger
Motherhood
Molly Ladd-Taylor
Natural and artificial selection
Douglas Wahlsten
Natural kinds
Matthew H. Slater
Nature vs nurture
James Tabery
Nazi euthanasia
Paul Weindling
Nazi sterilization
Paul Weindling
Newgenics
Caroline Lyster
Nordicism
Michael Kohlman
Normalcy and subnormalcy
Gregor Wolbring
Parenting and newgenics
Caroline Lyster
Parenting of children with disabilities
Dick Sobsey
Parenting with intellectual disabilities
David McConnell
Pauperism
Caroline Lyster
Person
Gregor Wolbring
Physician assisted suicide
Caroline Lyster
Political science and race
Dexter Fergie
Popular culture
Colette Leung
Population control
Alexandra Stern
Prenatal testing
Douglas Wahlsten
Project Prevention
Samantha Balzer
Propaganda
Colette Leung
Psychiatric classification
Steeves Demazeux
Psychiatry and mental health
Frank W. Stahnisch
Psychology
Robert A. Wilson
Public health
Lindsey Grubbs
Race and racialism
Michael Billinger
Race betterment
Erna Kurbegovic
Race suicide
Adam Hochman
Racial hygiene
Frank W. Stahnisch
Racial hygiene and Nazism
Frank Stahnisch
Racial segregation
Paula Larsson
Racism
Michael Billinger
Reproductive rights
Erika Dyck
Reproductive technologies
Caroline Lyster
Residential schools
Faun Rice
Roles of science in eugenics
Robert A. Wilson
Schools for the Deaf and Deaf Identity
Bartlomiej Lenart
Science and values
Matthew J. Barker
Selecting for disability
Clarissa Becerra
Sexual segregation
Leslie Baker
Sexuality
Alexandra Minna Stern
Social Darwinism
Erna Kurbegovic
Sociobiology
Robert A. Wilson
Sorts of people
Robert A. Wilson
Special education
Jason Ellis
Speech-language pathology
Joshua St. Pierre
Standpoint theory
Joshua St. Pierre
Sterilization
Wendy Kline
Sterilization compensation
Paul Weindling
Stolen generations
Joanne Faulkner
Subhumanization
Licia Carlson
Today and Tomorrow: To-day and To-morrow book series
Michael Kohlman
Training schools for the feeble-minded
Katrina Jirik
Trans
Aleta Gruenewald
Transhumanism and radical enhancement
Mark Walker
Tuberculosis
Maureen Lux
Twin Studies
Douglas Wahlsten & Frank W. Stahnisch
Ugly Laws
Susan M. Schweik and Robert A. Wilson
Unfit, the
Cameron A.J. Ellis
Violence and disability
Dick Sobsey
War
Frank W. Stahnisch
Women's suffrage
Sheila Rae Gibbons

Bioethics

“Bioethics” is a term that was first coined by a German pastor, philosopher, and educator in 1927 (Sass, 2007). The term became more common in the 1970s (Cooter, 2004) and according to the bioethicist Sherwin “bioethics emerged in the late 1960s from two major areas: research ethics and clinical medical ethics (Sherwin, 2011). Bioethics intersects with eugenics most pointedly around practices such as prenatal and preimplantation genetic testing for the purpose of quality controlling potential off-spring, the application of various genetic technologies such as gene therapy and human enhancement and topics such do not resuscitate and various forms of euthanasia.

Bioethics: a potted history
In 1927, Fritz Jahr published the article “Bio-Ethics: A Review of the Ethical Relationships of Humans to Animals and Plants”, proposing a “bioethical imperative,” extending Kant’s moral imperative to all forms of life (Sass, 2007). (Whitehouse, 2003) states that in the American context the term “bioethics” was coined by Van Rensselaer Potter (Potter, 1970) as an attempt to integrate biology and values designed to guide human survival. A 2004 Lancet article claims that the term “bioethics” was coined for the USA in 1970 independently by two fractions namely Van Rensselaer Potter, on the one side, and R Sargeant Shriver and André Hellegers of the Catholic university at Georgetown, Washington, DC on the other side (Cooter, 2004). Both sides had quite a different understanding of what bioethics should entail.

Cooter stated: “Whereas for Potter “Man’s survival may depend on ethics based on biological knowledge, hence bioethics”, Shriver and Hellegers needed a catch-all term to describe philosophising around biomedical dilemmas, especially that done by people outside the medical profession. While Potter saw bioethics as a new discipline combining science and philosophy, the Georgetown philosophers and theologians regarded it as a branch of applied ethics” (Cooter, 2004), p 1749). According to (Whitehouse, 2003) Potters understanding was mostly ignored. Jahr’s understanding of the word also was not reflected in the Georgetown definition. According to Sherwin, “bioethics emerged in the late 1960s from two major areas: research ethics and clinical medical ethics (Sherwin, 2011) a statement that reflects a view of bioethics history that did not see Jahr or Potter as the ones giving it its meaning but an understanding that is more in tune with Shriver and Hellegers understanding. The Nuffield Council on Bioethics (UK) understanding also reflects the definition of Shriver and Hellegers when it describes bioethics as follows:

Ethics is about what we ought or ought not to do. Bioethics is one branch of ethics. Since the 1970s the term has been used to refer to the study of ethical issues arising from the biological and medical sciences. According to the Encyclopedia of Bioethics (1995. p. 250) it encompasses: “the broad terrain of the moral problems of the life sciences, ordinarily taken to encompass medicine, biology, and some important aspects of the environmental, population and social sciences. The traditional domain of medical ethics would be included within this array, accompanied now by many other topics and problems. (Nuffield Council on Bioethics; London, 2014).

Resnik outlines various key events in regard to research ethics from 1932-2014 (Resnik, 2014). The Hastings Center--originally named The Institute of Society, Ethics and the Life Sciences--the first Centre organized around bioethics questions, was founded by the philosopher Daniel Callahan and the psychiatrist Willard Gaylin, M.D. in 1969. There are not only many topics covered under the umbrella of bioethics there are also many different ethics theories employed within bioethics(Arras, 2010). One influential approach to guide bioethical reasoning is based on the four principles:

Autonomy – one should respect the right of individuals to make their own decisions

Nonmaleficence – one should avoid causing harm

Beneficence – one should take positive steps to help others

Justice – benefits and risks should be fairly distributed

(introduced by Beauchamp & Childress, 1979).

Bioethics and eugenics
There are many forms that eugenics takes. Diagnostic technologies such as prenatal and preimplantation genetic testing or ultrasound can be used to look for genetic and morphological ‘deviances’ that one then want to act upon through termination of pregnancy of selection of an embryo for implantation use with IVF procedures. These technologies and actions mostly fall within negative eugenics. Various genetic technologies are also under development for the purpose of somatic and germline gene therapy and genetic enhancement which mostly would fall under the area of negative eugenics. A lively policy debate exists for some time that looks into how and under what circumstances to apply these diagnostic and genetic modification technologies.

Bioethicists have been involved in the discussions of eugenics and of the technologies mentioned for some time. If one searches the journal Bioethics, a leading academic bioethics journal, for the term “eugenics”, 88 articles are found; n=119 cover prenatal testing, n=27 preimplantation testing, n=81 “gene therapy”, n=175 IVF and n=297 euthanasia. Recent development to enhance the human body through genetic and non- genetic interventions is also already covered by bioethicists with the journal Bioethics having n=42 articles on “human enhancement” and n=38 covering “genetic enhancement”. Articles that cover the emerging field of synthetic biology which is about building genomes from the bottom up are also already covered n=12 in the journal.

Conclusion
We continuously find new ways to modify biological matter including humans and to act out negative and increasingly positive eugenic ideas. The Canadian Supreme Court just thrown out the prohibition of assistive suicide in Canada indicating another area that will now be even hotter debated in Canada. As such bioethics will continue to be an important field

-Gregor Wolbring

  • Arras, J. (2010). Theory and Bioethics. from http://plato.stanford.edu/entries/theory-bioethics/

  • Beauchamp, T. L., & Childress, J. F. (1979). Principle of Biomedical Ethics.<.i> NewYork/Oxford: Oxford University Press.

  • Cooter, R. (2004). Bioethics. The Lancet, 364(9447), 1749.

  • Nuffield Council on Bioethics; London, U. (2014). What is Bioethics? , from http://nuffieldbioethics.org/about/bioethics-faqs/

  • Potter, V. R. (1970). Bioethics, the science of survival. Perspectives in Biology and Medicine, 14(1), 127-153.

  • Resnik, D. (2014). Research Ethics Timeline (1932-Present). from http://www.niehs.nih.gov/research/resources/bioethics/timeline/

  • Sass, H.-M. (2007). Fritz Jahr's 1927 concept of bioethics. Kennedy Institute of Ethics Journal, 17(4), 279-295.

  • Sherwin, S. (2011). Looking backwards, looking forward: Hopesfor bioethic's next twenty five years. Bioethics, 25(2), 75-82.

  • Whitehouse, P. J. (2003). The rebirth of bioethics: extending the original formulations of Van Rensselaer Potter. American Journal of Bioethics, 3(4), 26-31.